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Old 07-21-2008, 08:55 PM   #10
Colleens_Husband
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Join Date: Jan 2008
Location: Oregon City
Posts: 856
Dear Lisa:

I am sorry this is happening to you. You need to make sure that you are your own health care advocate. Your doctors are there for you, you aren't there to make them rich. If they can't find a cause of the nausea, then ask them what their plan is for finding out what is wrong. If they have exhausted the limits of their expertise, then ask them who they know who might be able to figure out what is wrong with you.

They may treat you like your crazy because they think they can get away with it. If they intimidate you, they don't have to deal with what should be an interesting challenge to them.

Lisa, you aren't crazy. Make them treat you like an adult.

Lee
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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