Back from Angioplasty!
Hello dear group -
Here is my report on unclogging my vena cava.
My day on Tuesday was rather messed up, but they did get to me in the end.
I checked in at 8am for a 10am procedure. Well, the desk said they had me down for 10am check in and 12 noon procedure. I said "whatever" and would chill with my book.
Time went by and they moved me from the 4 person day patient room to a two person room. Then my doctor's nurse practioner showed up at about 1:30 to tell me that a very complicated emergency case had been brought in and the team elected to work on that lady before me. Plus the case in front of me had taken longer than expected. About 4:30 the nurse came back and said they were STILL working on that lady who had 6 badly clotted veins in her legs, but would bring me down momentarily to begin the prep process.
(It is beyond me how someone can be SO bad off that they are not treated somehow, somewhere and only come to emergency when it is life or death time.)
When my doctor came in he said, "You have been the subject of much discussion around here." Well, THAT got my attention. My case had been discussed in two department conferences. The prevailing wisdom was to try to get a wire past the clot in my vena cava and open it up without taking out my port-a-catheter. THEN, if that failed they would pull my port and try the balloon again.
Fortunately our Good Lord heard all the fervent prayers and the balloon procedure did finally work. They went in via my right internal jugular and were able to get my vein open without needing a stent. My symptoms are already getting better. My surface veins on my abdoman have not miraculously disappeared as Joan's did, but are much better looking.
My roommate for overnight was an overweight 51-year-old lady who had the lap band procedure. She was up using the bathroom by dawn and wanting a shower! She had 5 little bandages on her abdoman and very little pain. We chatted a lot while waiting for our rides home.
Went to the cancer center yesterday for my usual Herceptin and my nurses were all very happy to see me looking better and able to keep my port.
My vascular surgeon will monitor me for any return of symptoms and gave me PLAVIX to take to keep my platelets from closing the area he worked on. Hope that will work! This may be a somewhat temporary measure, but at least I am under the care of another top doc.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|