HER2 Support Group Forums - View Single Post - DM1 trial stopped and I may want to fight it

Barbara H. · 07-17-2008, 06:31 PM

Hi Eric,
I agree with Chrisy's and Lani's thoughts as well as the thinking of your oncologist from NJ. First of all, Caryn skipped so many treatments that it is not surprising that there was some progression. It makes since that she should be allowed to resume treatment to insure that the progression was from lack of treatment, not from her inability to benefit from the drug. I spoke to my research nurse for the trial today and she could understand my point. It is worth a try to persuade Caryn's oncologist at Sloan to allow her to have some more treatments to prove that she is truly not responding. Perhaps she will also get a resposne.

It has also taken by body a while to adapt to this drug. In the beginning I had to skip treatment every three or four weeks because my liver enzymes would be too high. They were really jumping around. Now they tend to inch up with each treatment, but they are currently much more stable.

Best wishes and good luck!!!

Barbara H.

07-17-2008, 06:31 PM	#9
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Trial Hi Eric, I agree with Chrisy's and Lani's thoughts as well as the thinking of your oncologist from NJ. First of all, Caryn skipped so many treatments that it is not surprising that there was some progression. It makes since that she should be allowed to resume treatment to insure that the progression was from lack of treatment, not from her inability to benefit from the drug. I spoke to my research nurse for the trial today and she could understand my point. It is worth a try to persuade Caryn's oncologist at Sloan to allow her to have some more treatments to prove that she is truly not responding. Perhaps she will also get a resposne. It has also taken by body a while to adapt to this drug. In the beginning I had to skip treatment every three or four weeks because my liver enzymes would be too high. They were really jumping around. Now they tend to inch up with each treatment, but they are currently much more stable. Best wishes and good luck!!! Barbara H.