HER2 Support Group Forums - View Single Post - HOORAY! Clots going to be fixed

StephN · 07-12-2008, 02:41 PM

My appointment for this procedure is on Tuesday, July 15th. They were able to move my date up a little, which is great with me!

I am supposed to only spend one night in the hospital under observation, so I am in high hopes that is all.

Am actually feeling pretty good and have been quite busy. We have the visit of a Russian historian from the far east of Russia who is staying a month. This is day 5 and the communication gets better each day. My husband does speak Russian, thankfully. I got her started on her research at the University of Washington and that is also where I will be for my procedure.

I WILL BE PORTLESS. First thing the vascular surgeon will do is take out that port and then try to deal with my vena cava. On Thursday I am scheduled for my 3-week Herceptin. They will use my arm, which I have been trying to avoid all these years.

Your positive thoughts and prayers on Tuesday will be much appreciated. With everything going on I may be off the board for a bit, so don't worry if you don't see me. You are all in my prayers every day.

07-12-2008, 02:41 PM	#8
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	quick update My appointment for this procedure is on Tuesday, July 15th. They were able to move my date up a little, which is great with me! I am supposed to only spend one night in the hospital under observation, so I am in high hopes that is all. Am actually feeling pretty good and have been quite busy. We have the visit of a Russian historian from the far east of Russia who is staying a month. This is day 5 and the communication gets better each day. My husband does speak Russian, thankfully. I got her started on her research at the University of Washington and that is also where I will be for my procedure. I WILL BE PORTLESS. First thing the vascular surgeon will do is take out that port and then try to deal with my vena cava. On Thursday I am scheduled for my 3-week Herceptin. They will use my arm, which I have been trying to avoid all these years. Your positive thoughts and prayers on Tuesday will be much appreciated. With everything going on I may be off the board for a bit, so don't worry if you don't see me. You are all in my prayers every day. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.