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He called them...
My onc called them and they approved continued use and then they sent me (and him) the letter telling me it was experimental and they would not reconsider paying for the treatment under any circumstances. The woman in the insurance part of the clinic said that they do that ...give oks and take them back.
I see the doctor on the 11th and will ask him if they ever give in again. His nurse has had the insurance department apply for drug replacement for me and I guess they are waiting to hear.
While I am not stage 4, both I and my onc believe that without herceptin, I would recur right away. No proof, just all the lab reports, etc.
Thank you for your input. ma
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MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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