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Lani · 07-04-2008, 10:24 AM

are you Stage IV and NED? If so I can try to send you links to articles that recommend continuing herceptin (and just add drugs to it if/when resistance develops) in Stage IV patients. If you are not, and have just continued adjuvant therapy longer than the recommended one year, I fear the story will be "There is no evidence for randomized clinical trials" (something heard over and over again)

If you look at your insurance policy they often use wording as to what they consider experimental treatment. Showing that wording to your doctor might help him/her phrase a letter in a way to force them to reconsider.

Best of luck!

07-04-2008, 10:24 AM	#5
Lani Senior Member Join Date: Mar 2006 Posts: 4,783	Mary Anne --I looked for your treatment history in your profile, but missed it are you Stage IV and NED? If so I can try to send you links to articles that recommend continuing herceptin (and just add drugs to it if/when resistance develops) in Stage IV patients. If you are not, and have just continued adjuvant therapy longer than the recommended one year, I fear the story will be "There is no evidence for randomized clinical trials" (something heard over and over again) If you look at your insurance policy they often use wording as to what they consider experimental treatment. Showing that wording to your doctor might help him/her phrase a letter in a way to force them to reconsider. Best of luck!