HER2 Support Group Forums - View Single Post

Andrea Barnett Budin · 07-04-2008, 09:28 AM

Dear Tamara,

I am seriously concerned about your well-being.
Your situation is AN URGENT MATTER. This is what I believe you must do -- and you must do it right this minute! For yourself!

PLEASE MAKE A COPY OF ALL YOUR HER2 POSTS IN *CHECKING IN* AND FAX THEM TO YOUR ONCOLOGIST. SEND A COPY TO SEVERAL OF YOUR DOCTORS. Please do this right this now!

You are in need of medical help immediately. It is 4th of July weekend. Do not waste a single second in doing this. This is the best way to get your point across. You need help. You are in trouble.

Follow up, immediately again, with phone calls to alert these docs that they need to check their fax machines! Please do this, Tamara.

Are you alone? Do you live with anyone? Can you ask them to post here, commenting on your status? Please do this for yourself.

I am sending you love and prayers.

Andi

07-04-2008, 09:28 AM	#15
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Urgent Matter!!!! Dear Tamara, I am seriously concerned about your well-being. Your situation is AN URGENT MATTER. This is what I believe you must do -- and you must do it right this minute! For yourself! *PLEASE MAKE A COPY OF ALL YOUR HER2 POSTS IN CHECKING IN* AND FAX THEM TO YOUR ONCOLOGIST. SEND A COPY TO SEVERAL OF YOUR DOCTORS. Please do this right this now! You are in need of medical help immediately. It is 4th of July weekend. Do not waste a single second in doing this. This is the best way to get your point across. You need help. You are in trouble. Follow up, immediately again, with phone calls to alert these docs that they need to check their fax machines! Please do this, Tamara. Are you alone? Do you live with anyone? Can you ask them to post here, commenting on your status? Please do this for yourself. I am sending you love and prayers. Andi __________________ Andi BB** '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now... Last edited by Andrea Barnett Budin; 07-04-2008 at 09:31 AM.. Reason: butterfly again