[Pam P]

Thank you for starting this post. I have never acheived NED either. I keep hoping, but so far 'stable' has been my best report. I have mets to the bones. I was 1st dx 7 years ago this month stage III. A little over a yr later one bone lesion first appeared. It was probably there from the beginning my onc. says, but just didn't show on scans. Since then I've been on some kind of treatment constantly - mostly chemo. Now the scans show involvement in several ribs & vertebrae. So no chemo yet has completely wiped it out, but I still hope it will happen. Meanwhile I'll take stable. I've learned to live with my 'new normal' of dealing with chemo s/e. I think I've been pretty lucky in that mostly the chemo s/e have been tolerable for me. I'm enjoying my friends, family, 1 yr old grandbaby!, work (most days) although I wish I could afford to retire, but I'm 56 & need the income & health insurance. I'm praying we have many, many, many more years even without NED.