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6/30/08 Update since last Herceptin:
In the past 8 days I should have slept at least 56 hours; my body has only allowed 29 hrs. Last night was the first night I had 5 straight hours of sleep (still waiting for dr.'s to order Sleep meds-they too are trying to understand and figure this out. I am at home by choice; hangn in there.
I have no real appetite, excessive thirst, vison-blurry at times, pain at thyroid surgery site, I can feel blood in heart pool and disperse(new for me) bowels and urine OK for a change, there is a slight pressure across chest area (side to side)and occasional burning in my lungs (had this after Rads which subsided)
On a brighter note I took a slow but nice walk around the neighborhood. Tried to nap again-can't. Too many thoughts. I am concerned about who mixed my Infusion and were there mistakes made that no one is talking about. All I get to see is a clear bag-looks like water to me.
I hope this ends soon and I can get on with my life. I took the day off work today, will try and work tomorrow. I worked all last week-miracle in itself how I can keep going.
For all HER2 with thyroid disease and Herceptin our doctors need to listen and pay close attention this is serious stuff. My CVS Pharmacy is getting concerned as we wait for Doctors thoughts on the matter. I cant really walk into an ER-I don't have insurance-to date my bill has got to be through the roof. Take Care.
Tamara
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