HER2 Support Group Forums - View Single Post - How Long Have You Been On Tykerb & How Is Your Rash?

D.W. · 06-30-2008, 11:38 AM

I am 43 also and have had mets to ovaries, brain, vertebrae and hip. Jealous, huh? Herceptin no longer worked for me, so I am on xeloda/tykerb--started about two months ago. I don't have the rash like you, but have had diahrreah (ugh) and the hand/foot syndrome. My fingers around the nails bleed easily if bumped and sometimes my feet are so sensitive that I don't go barefoot.

Just a suggestion-- let the onc/dr. know how uncomfortable you are and don't let him/her ignore your needs. "The squeaky wheel gets the grease."

I had radiation to the brain and hip/vertebrae, oh, about a month ago and can relate to the hair (or lack thereof) issue. The hair in the front is trying to come back, but the back has almost no growth--kind of disconcerting.

Go ahead and vent--Cancer Stinks!!!

Best wishes for you!!!

06-30-2008, 11:38 AM	#4
D.W. Senior Member Join Date: Apr 2008 Location: Indianapolis Posts: 46	Hi Lopsided/Sheila I am 43 also and have had mets to ovaries, brain, vertebrae and hip. Jealous, huh? Herceptin no longer worked for me, so I am on xeloda/tykerb--started about two months ago. I don't have the rash like you, but have had diahrreah (ugh) and the hand/foot syndrome. My fingers around the nails bleed easily if bumped and sometimes my feet are so sensitive that I don't go barefoot. Just a suggestion-- let the onc/dr. know how uncomfortable you are and don't let him/her ignore your needs. "The squeaky wheel gets the grease." I had radiation to the brain and hip/vertebrae, oh, about a month ago and can relate to the hair (or lack thereof) issue. The hair in the front is trying to come back, but the back has almost no growth--kind of disconcerting. Go ahead and vent--Cancer Stinks!!! Best wishes for you!!!