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vickie h · 06-20-2008, 03:11 PM

Harrie, Jean and Flori,

Thank you for your insights and referrals. I have been unhappy with Premiere Oncology as of late (a very high turn-over amongst the nurses and schedulers) and felt rushed and stressed when I'm there. I love Linea but feel it's time to move on now that the Doxil is not working. My skin mets are spreading and now I have involvement in the neck, right hilar region and my left lung. Dr. Chap has not called me back for another treatment option in 2 weeks, but her new nurse just called yesterday and thought a second opinion was OK and then she would decide. I called Dr. Slamon and they were great.
Even though they are not seeing new patients, his secretary/scheduler is going to get me in as soon as possible.
I am so grateful for all the help you provided and I plan to call Flori's Onc as well.
I love you, dear sisters! Vickie

06-20-2008, 03:11 PM	#7
vickie h Senior Member Join Date: Jun 2006 Location: san luis obispo, ca Posts: 1,150	Thank you so much! Harrie, Jean and Flori, Thank you for your insights and referrals. I have been unhappy with Premiere Oncology as of late (a very high turn-over amongst the nurses and schedulers) and felt rushed and stressed when I'm there. I love Linea but feel it's time to move on now that the Doxil is not working. My skin mets are spreading and now I have involvement in the neck, right hilar region and my left lung. Dr. Chap has not called me back for another treatment option in 2 weeks, but her new nurse just called yesterday and thought a second opinion was OK and then she would decide. I called Dr. Slamon and they were great. Even though they are not seeing new patients, his secretary/scheduler is going to get me in as soon as possible. I am so grateful for all the help you provided and I plan to call Flori's Onc as well. I love you, dear sisters! Vickie __________________ Love and Hugs, Vickie Life's not about waiting for the storm to pass, It's about learning to dance in the rain. Feb 04 IBC IIIC/IV er-/pr- her2+++ 3/04 TCH X4 7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads 11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos. 8/ 06 PET mets lymphs, neck 9/ 06 Navelbine/herceptin 11/ 06 PET NED 2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb 2/ 08 Tykerb failed. Doxil /Herceptin 6 months 8/08 PET skin mets, 8/08 Abraxane/Avastin 11/ 08 PET prog., skin mets 1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone 2/09 off Ixempra/Xeloda 3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed. 8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.