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Old 06-17-2008, 02:18 PM   #14
jones7676
Senior Member
 
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
I totally understand what you are going through. When I developed a lung met, my oncologist felt it was lung cancer due to my history of smoking. However, upon that diagnosis, they did not have my original slides. I have a friend that works at the NIH and she had me send the lung biopsy slide as well as the original slides from my breast tumor. 4 or 5 people there looked at them and they all agreed that it was a breast cancer met. Chemo resolved the problem at that time....

Recently I've developed a second met in the other lung in addition to a "flare up" on the old one and I'm wondering......and scared. Who is right? Which is more reliable. Scientific tests or doctors? Are the tumors shaped differently? Should I try to have them removed? I'm afraid I might go through a removal procedure only to have them come back- which is the best approach?

I will be watching what you do and how it turns out very closely....as I'm personally very interested (I care about everyone else as well of course).

I hope you would send me a personal email if you should run across something very fabulous. It might save my life too.

I hope you get the answers you need and find a successful treatment. I'll be thinking of you and sending positive vibes your way.
__________________
Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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