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pattyz · 06-09-2008, 05:05 AM

goops,

We've taken into our home four (rescued) aged fur-babies over these past yrs since dx. and mets. Two are romping where all good doggies go... and one of them died from maglignant melanoma.

The 'kids' are the only thing that get me going on the days where nothing else will. Our need for eachother is symbiotic.

Losing one... well I don't have to go there, I'm sure you know. But, GIVING them a second chance, a loving 'forever' til the end home, these are more meaningful to me in the big picture.

As to the main topic here! I find value in all that's been said and reported, yet hold firmly to the 'crap shoot' theory.

Inflammatory and Invasive 6-26 pos. nodes MRM Jan. 2000. Stage IIIb er+pr- not Her tested until:

Mets to mediastinal nodes/spots on lung/pelvis July 2002. Her2+++

Mets to brain (first time) Sept. 2002.
Mets to brain (2nd time) March 2003.
Mets to brain (3rd time/current) March 2005.

So, my by my count, that's nearing 9 yrs from the beginning and close to 6 for brain mets... and I've done practically no 'standard' of treatment throughout.

I had the MRM first, then A/C and no rads.
Did just two months of Tamoxifen, then nothing.

On body mets dx: Navelbine/Herceptin til 'NED' - 3mos. that's it.

Brain mets dx: have had no WBR, but many focalized. And have responded in one way or another to Xeloda/Temodar since 8/05.

Part of what I'm trying to say is that I did not do the 'right' thing as far as known standards of care. So those things have not been the reason for my extended expiration date... thus the 'crap shoot' theory. And I do know it applies to many others, too.

just my veiw...
pattyz and fur-kids (ages: almost 59, 12 and 7)
Lyle (just turned 71, on Tamoxifen, feeling good)

06-09-2008, 05:05 AM	#26
pattyz Senior Member Join Date: Mar 2006 Posts: 306	goops, We've taken into our home four (rescued) aged fur-babies over these past yrs since dx. and mets. Two are romping where all good doggies go... and one of them died from maglignant melanoma. The 'kids' are the only thing that get me going on the days where nothing else will. Our need for eachother is symbiotic. Losing one... well I don't have to go there, I'm sure you know. But, GIVING them a second chance, a loving 'forever' til the end home, these are more meaningful to me in the big picture. As to the main topic here! I find value in all that's been said and reported, yet hold firmly to the 'crap shoot' theory. Inflammatory and Invasive 6-26 pos. nodes MRM Jan. 2000. Stage IIIb er+pr- not Her tested until: Mets to mediastinal nodes/spots on lung/pelvis July 2002. Her2+++ Mets to brain (first time) Sept. 2002. Mets to brain (2nd time) March 2003. Mets to brain (3rd time/current) March 2005. So, my by my count, that's nearing 9 yrs from the beginning and close to 6 for brain mets... and I've done practically no 'standard' of treatment throughout. I had the MRM first, then A/C and no rads. Did just two months of Tamoxifen, then nothing. On body mets dx: Navelbine/Herceptin til 'NED' - 3mos. that's it. Brain mets dx: have had no WBR, but many focalized. And have responded in one way or another to Xeloda/Temodar since 8/05. Part of what I'm trying to say is that I did not do the 'right' thing as far as known standards of care. So those things have not been the reason for my extended expiration date... thus the 'crap shoot' theory. And I do know it applies to many others, too. just my veiw... pattyz and fur-kids (ages: almost 59, 12 and 7) Lyle (just turned 71, on Tamoxifen, feeling good) Last edited by pattyz; 06-09-2008 at 05:30 AM..