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Duga - this is the problem as I perceive it. We have to TRUST the infusion nurses.......no matter how much we trust our oncologists, it's the nurses who give us our treatments, and some of them don't inspire great trust.
So the question remains - how do we question the treatment while it's being given, without causing offense? Sometimes my desire to question is only to gently prod the nurse to double-check herself. Too often in my life I've been in situations where the "experts" failed to notice something that was very important to me (doctors and lawyers included) so I have a strong desire to advocate for myself. Still I get the feeling that I cause offense even when I'm not sounding nasty or assertive.
Does anyone have any advice for how to best approach the nurses during treatment?
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xxoo
Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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