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My answers are very much like Mary Anne's, but I get a little extra...My onc gives me a hug, a kiss and tells me he loves me (in Greek every time I see him. If for some reason Theo can't be there, his nurse practitioner is there for me the same. She is an angel on earth. Can't start the visit without a big hug and a tear. They worry if they haven't heard from me in a while (between the leukemia doctor and all) and will call just to check on me. I truly believe that it all has to come together - your attitude and seriuosness to take care of your self, your family, friends and support, your medical care/medications, prayer and LOVE. Over the last 8 1/2 years, it has not always been easy to get straight answers, and sometimes other people butt in. If you feel like sometimes someone is dropping the ball on you - SPEAK UP!!!! You have to be your best advocate and get what you need. You are the consumer!!!!
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Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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