|
Anxiously awaiting myself, too!
Joy, first of all you are not neurotic, just trying to deal with all the uncertainty. Not too much fun, is it?
The same is true of ALL treatments, too little is known about who will respond and who doesn't....but it's compounded in this case because there is so little data it's hard to even guess!
Meanwhile, I'm hoping for miracles of intervention myself...I was denied for treatment again, that dumb AST still too high (although still not as high as it's been and barely over the study "limit"). Still, this time it may mean I'm DQ-d from the trial. Which would really be a bummer because it DOES seem to be working for me.
My doctor is going to talk to the medical monitor of the trial, hopefully they can find me a loophole while I try and figure out how to get those darn LFT's down. Of course, she's at ASCO this week, so that makes it harder!
Joy, you responded for a long time on Herceptin, I think that's a good sign.
Irene, keeping my fingers crossed for you too. Maybe all our hopeful vibes will help the universe find doors for us, or at least a window we can sneak through.
Much love
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
|