Thanks for all the great replys gang. I'm sorry that I don't post as much as I used to, but when the weather is nice I have to get out there and ride. I'm giving Bailador a little rest today because we went out to Pt. Reyes and had a very long ride yesterday. And a very interesting ride it was (saw our first nude hiker, OMG takes all kinds I guess) I took my camera with me, to get some pictures to post for you, but then I forgot my saddle bags and had nowhere to put the camera! I hate when I do that....
We have an endurance ride coming up in 2 weeks, so we have been doing lots of conditioning. Unfortunately, with the price of diesel over $5 a gallon here, I will only be going to a few rides this summer and they won't be far away.
Wow Bill, I wish we had a Tractor Supply Store in our area. I love schlepping around in those kind of stores, they always have such neat stuff.
And Chelee, you get some horses to put around your pool, I'm sure the neighbors won't mind at all!
I've become so enthused about riding that I talked the nurse practioner in my oncologist's office to come on a trailride with me. (She used to be a 3-day eventer, but hasn't ridden in 18 years) Anyway, she came over to our house to test ride Bailador before our intended trailride and had a wonderful time. We had our trail ride all planned, and then she called a week later and said she was going to have to cancel because she was in extreme pain and still couldn't cross her legs. All I wanted to do was share the joy, but she's in so much pain, I just hope she will still talk to me!
Anyway, call me crazy, but I like the pain. It's a good kind of pain and let's me know I'm still alive ....So if any of you are ever in the area I'd love to share the joy, or pain or whatever!
Kim
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Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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