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Too short a holiday
Sheila, sorry your taxol holiday was only long enough to give you a TASTE of how nice it is to have a bad hair day. Much as I know you hate getting back on that train, taxol not failing you is of course a good thing. And only a breast cancer fighter would hope for arthritis!
I know how discouraged you must feel...and at the same time I know your next step will be to get really pissed off at that dumb canser and then it better watch out. Have a good cry, then suit up with that pirate bandanna...
I'm sure you've considered this, but have you ever tried to maybe reduce the dose on the decadron? I used to get it as an IV drip and after a couple of weeks I asked them to drop the dose, and they were able to cut it in half. It helped me a lot - I used to get a cherry red face the next day - and of course kept me from being up all night wanting to clean house or something. That of course, is my husband's job!
Hang in there, my sweet sister.
Love
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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