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Hello my lovely lady, my beam of hope..
No he was happy to give me herceptin but did not want me to go to Germany and had not wanted to give me the first scan that allowed me to make the right change to my treatment anyhow he did allow me to have more taxotere that UK protocole allows for so he redeemed himself at the end! But still have to beg to get a scan when I do not speak to him personally anyhow..
Not sure yet what is coming next..I think I want to learn Spanish (being French it is quite easy and I kept on thinking that when doing the pelgrimage) and on the 15 June I will be doing the London-Brighton Bike race (70/80 miles) for charity.. Indeed my primary target is to continue to really get fit and healthy: I want to breeze health!!.. I want people to think that the rumour about this girl categorised as having incurable cancer is obviously very silly!!!
Hey by the way I went to Nottingham last week end to actually see the Dalai Lama in person who was giving teaching lesson to us (a large audience)..he is very wise indeed and has much warmth about him..
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
Last edited by fullofbeans; 05-28-2008 at 01:03 PM..
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