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Old 05-24-2008, 12:02 PM   #9
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
Hi from San Diego

Dear Steph:

Thank you for your nice note. Hope all's well with you.

Hubby is improving, learning to walk and talk all over again- is a long process, but we have to have patience, right? Like I do not know anything about it? Things are pretty good at home.

I'm still on herceptin, onc believes that for the moment I should just receive herceptin and nothing else, since I had such a good response to the radiation. Let me tell you about radiation oh boy! it was such a challenge, I never imagined I was going to be so tired... It was ok at the beginning but it is cummulative so towards the end of the treatment I was feeling really tired. Other than that- as you may know, it does not take long to go through each session. I'm just relieved it's all over for now.

Husband and I are looking forward to more positive things in our lives. We are both now retired, spending every single minute of the day elbow to elbow, like conjoined twins LOL!. We'll be going to Squaw Valley in June to spend time with Kent's brother and wife. They have just finished up building a lodge up there, so am looking forward to that and to having some good wine and a relaxing time.

Let's see... in September we have plans to visit Vermont, hopefully it's not too early to admire the change of colors. Then in October is cruising time to Mexico- Cabo San Lucas, then onto Ensenada where we'll be taking a tour to the famous mexican winery Pedro Domecq and another local one called L A Cetto. You have probably have heard of these two wine producers, since you are in the same line of business. And then.....

Well that's it for us..What are you up to Steph?
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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