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Old 05-21-2008, 05:30 PM   #8
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Kelli,
the hair thing is hard - I mean, we all know its JUST HAIR...but...it's a visible sign of the battle that we'd rather not have to fight.

I like the way Mary Anne put it - you can have a visible reminder of how strong you are, how much of a fighter you are. I wish someone had said that to me at the time!

If you're not comfortable with the bald thing in public (I wasn't), cover it up - wig it, hat it, wrap it, or forget it. If you intend to wear hair, get a really good wig.

Believe it or not, you can also have fun with it. OK, maybe not as much fun as Disneyland...but some of the things that made it easier for me were going to the local cancer center where they have 'free' wigs...and getting a bunch of hair that was TOTALLY not me! I felt like a spy. It was fun walking up to people and having them not recognize me.
Even my husband passed me on the street and didn't know me. That was especially delicious because I was able to torture him over that for some time LOL. And it's really easy to apply sunscreen although you need a LOT more than before.

Basically, Kelli, you just do what you can. My priority was I wanted to be as comfortable as possible...for me that meant I just wore a baseball cap most of the time - even at work. I'd "wear hair" for special occasions, or when I wanted to be a spy.

Do what feels right for you...and keep your eyes on the (recovery) prize!

Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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