Thank You All
for your prayers and wonderful information.
I get so comforted hearing from my sisters and brothers....
I am taking in everything like a sponge and checking it out.
JOY - I do have two nodes in my neck that can easily be
biopsied or even removed.
Lilly and Lani - I am checking on those sites you gave me. Believe me, I will not leave any stones unturned if I can help it.
I asked my onc yesterday about removing those and he said we could but since my tumors have now spread to so many places he does not see a reason, but for my piece of mind.
also asked him about abalatiing the tumors in my liver or some type of procedure without major surgery. He also said to this that there are seeds (?) that they could inject directly to the liver.... but again
I know they do not like to do these types of procedures but I would still continue on chemo for the rest. I also asked about radiating the area in the neck and the spine. I guess if I could somehow reduce the number, in my mind I would feel more comfortable which I believe is so important. I need to retrieve my "Power" over this again - and I will.....
Believe it or not, I have such a hard time breaking the news to my family and friends. I hate to see them get so upset. Once I have talked about it to them, then I start feeling better. I have not even told my daughters yet which I dread.
And for this I thank you all for being here for me.....
I am contemplating taking a leave of absense so I can give some time to researching my options again...my company is wonderful to me (like a family) so I am sure I can work something out with them.
Well, I will let everyone know what they find out about the DM1 trial - yea or nay and if the Cisplatin/Irinotecan is approved by my insurance in case.
Take care my friends.
Am I crazy for even thinking this way or does anyone agree. Of course, only if the procedures are not so invasive as to cause immune suppression.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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