HER2 Support Group Forums - View Single Post - any Stage IV ever have benign liver lesions

chrisy · 05-15-2008, 09:51 PM

Sorry, I'm not a poster child for the result you are hoping for on the PET, but try not to panic. It could be a cyst or something else not cancer related. I see you suggest that it might be "scare" tissue - I know that's a typo, but it is an accurate description anyway, isn't it.

Whatever news you get with the next scan, it is information you need - either that you can breathe easy again, or that you need to suit up again for the battle. If that's the case, you've been there before and you of course know that you have lots of options.

Several people here have been researching a new treatment which involves radioactive spheres placed in the liver (I think it's called SIRT), there's also RFA and of course lots of "chemical weapons". If need be, you will be able to find out about all of that.

Based on what has been seen on the CT, your oncologist will probably say you have "minimal disease" - that drives me crazy because of course from my perspective even one cancer cell is too many - but this means you have options and time to consider them.

Hang in there...and please let us know what you learn.

love,
Chris

05-15-2008, 09:51 PM	#3
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Sorry, I'm not a poster child for the result you are hoping for on the PET, but try not to panic. It could be a cyst or something else not cancer related. I see you suggest that it might be "scare" tissue - I know that's a typo, but it is an accurate description anyway, isn't it. Whatever news you get with the next scan, it is information you need - either that you can breathe easy again, or that you need to suit up again for the battle. If that's the case, you've been there before and you of course know that you have lots of options. Several people here have been researching a new treatment which involves radioactive spheres placed in the liver (I think it's called SIRT), there's also RFA and of course lots of "chemical weapons". If need be, you will be able to find out about all of that. Based on what has been seen on the CT, your oncologist will probably say you have "minimal disease" - that drives me crazy because of course from my perspective even one cancer cell is too many - but this means you have options and time to consider them. Hang in there...and please let us know what you learn. love, Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure