|
Update for May 08
Hi Friends,
Wow, it was a very rough ride. My bili shot up quickly from 2 on Tuesday to 6.6 on Friday (April 4th). I called the doctor to report yellow eyes and strange colored BMs and urine and was sent to the emergency room for 9 days. We located the problem. The lymph nodes around the bile duct that leads away from the liver were swollen and closed the bile duct (as I understand it). My doctor had started Abraxane on Tuesday when the Bili numbers were at 2 and by Friday they were 6.6 & ALK, ALT, and SGOT were more than 10 times the top of the normal range. Each "specialist" that visited me while in the hospital scared the sh#t out of me saying stupid things like - "wow you don't look anywhere near as bad as your chart" and "I think that I wouldn't mind dying of cancer" ...I swiftly replied that I want to die of old age - thank you!
Well the good news is that they put a stint in the bile duct and gave me Carbo with the Abraxane and I am happy and relieved to report that my counts are all NORMAL!!!!! Total Bili is 0.7. The nausea was really bad for 2 weeks but they put me on Aloxi and I feel much better...just really weak. Doc says I will stay on Carbo with abraxane for 8 weeks and then drop the Carbo.
I am bald but found a really cute wig and I call her Victoria. The first day of my baldness I went to my 9 year old son's school for lunch. He was really scared about having a bald Mom...what did he say without missing a beat when he saw me???? Wow, Mom you look HOT!!!!!!! How is that for moral support?
Love, Hope, and Peace
Carolyn
|