HER2 Support Group Forums - View Single Post - is there anyone treat it only with Navelvine for liver mets

sassy · 04-27-2008, 12:03 PM

Lily,

The onc I recommended is the one Sheila, Joe, Christine and others met in San Antonio. When he left me, he told me that everything that we had done was exactly what he would have wanted his wife to do had she been in my shoes. So you know he will treat YOU. You will be a team. He will also talk to you, explain, discuss etc. My visits with him were always long, because we talked about any new BC treatment developments since my last visit. When I shared info from this site with him, he followed up on it. As a bonus, his wife is an endocrinologist, and they must surely share knowledge.

04-27-2008, 12:03 PM	#34
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	Lily, The onc I recommended is the one Sheila, Joe, Christine and others met in San Antonio. When he left me, he told me that everything that we had done was exactly what he would have wanted his wife to do had she been in my shoes. So you know he will treat YOU. You will be a team. He will also talk to you, explain, discuss etc. My visits with him were always long, because we talked about any new BC treatment developments since my last visit. When I shared info from this site with him, he followed up on it. As a bonus, his wife is an endocrinologist, and they must surely share knowledge. __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!