HER2 Support Group Forums - View Single Post - is there anyone treat it only with Navelvine for liver mets

Andrea Barnett Budin · 04-25-2008, 05:24 PM

Sweet TigerLily, We all love you. I just wanted to add my name to the petition! I second everything said. GET A NEW ONC (maybe Sassy's). KICK HIM TO THE CURB. I am so displeased with his attitude and his seemingly poor opinions, I have no words... And I speak English pretty well. Get over him. Listen to Sheila and Becky! And everyone on the long list of smart girls (and bros). Pretty much everyone who chimed in. I won't reiterate. Just want you to know I ECHO, ECHO, ECHO *everything* they all said!!!!!!!

Sending prayers and love to one of the dearest people it's ever been my honor to meet... Do not despair. It is time to move on. Please keep us posted, as we are all with you and your beloved family in this fight, Lily.
With huge hugs always,
Andi

04-25-2008, 05:24 PM	#32
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Lily, Honey, Come Over Here, Please... Sweet TigerLily, We all love you. I just wanted to add my name to the petition! I second everything said. GET A NEW ONC (maybe Sassy's). KICK HIM TO THE CURB. I am so displeased with his attitude and his seemingly poor opinions, I have no words... And I speak English pretty well. Get over him. Listen to Sheila and Becky! And everyone on the long list of smart girls (and bros). Pretty much everyone who chimed in. I won't reiterate. Just want you to know I ECHO, ECHO, ECHO everything they all said!!!!!!! Sending prayers and love to one of the dearest people it's ever been my honor to meet... Do not despair. It is time to move on. Please keep us posted, as we are all with you and your beloved family in this fight, Lily. With huge hugs always, Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...