|
Dear Lily
I am so sorry that I didn't read this sooner. I am not even going to read everyone else's responses - I am justing responding.
First, breathe. Then call the cancer center you go to and ask them to make you a full copy of your chart. Second, call your oncologist. Even IF Herceptin or Tykerb don't seem to be working for you, maybe they will help the Navelbine along. I think you should get another opinion on this but Herceptin won't hurt you.
Also, if a drug has worked for you before (like Taxotere), it can work again if it has been 6 months since the last infusion - so you can try it again.
Make another appointment with another oncologist as soon as you can. You need to find someone who you can be a partner with. Someone who understands that anti Her2 therapies and antihormonals work together with or without chemo to keep cancer in check. You should be trying Faslodex shots.
Perhaps it is not the Herceptin or the tykerb that wasn't working but that Tamoxifen or no antihormonal was working and you need a change there (like Faslodex). But above all, you need someone who will try to work with you and work with you logically. If you are Her2+ you need a drug for that. If you are hormone positive, you need a drug for that. And sometimes you need chemo to smack back the cancer harder.
You are stronger than the cancer and stronger than your current oncologist and you CAN do this. You can, you can, you can and you know you can.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|