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Old 04-15-2008, 06:21 PM   #6
madubois63
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Join Date: Feb 2005
Location: LI, NY
Posts: 660
Jean and everyone else...Didn't see the show, but as you said, "Each day we get a little bit closer." This conference has been a huge eye opener for me, and I am very excited by all that is happening. At times it is a little overwhelming, and I pray my chemo brain can remember half of what I've learned and heard.
The best part for me has been meeting the men and women that not only invented and perfected the drugs that have kept me and so many others alive, but the people that are working on the new stuff that is coming up. Like Steph mentioned in another post, these people are excited to tell us about there work. No one talks down to us. They realize that we understand our disease and that all of us are just as excited about what they are doing as they are themselves. Somethings are in the very early stages and probably shouldn't be mentioned until they are further along in their studies. Please know that many of the treatments being discussed are less or non-toxic. This excites me immensely because people receiving treatments down the line won't get leukemia from chemo like I did. I certainly don't want that happening to anyone else again. One diease is enough, but two just isn't right!!! Lots of talk about different vaccines...there is soooo much. I think it will take Steph and I several days/ weeks to post everything we've learned. Steph is so great. She's got info on upcoming trials. we are really tired and still have a half a day to go, so please be patient. I'm gonna take a nap before bed - lol!! Love to all...
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Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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