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Jaybt, I have tried arimidex, aromasin and lastly tamoxifen which caused stomach distress and a rash, I stopped it for a while and started it again, same thing stomach distress and rash. I had severe joint pain with the other two. Right now I am not taking anything. I have tried to make sure I eat a good diet, I walk 5-7 miles a day and work out with weights 3 times a week. I am not willing to try another AI. I have decided my quality of life is more important. The AI's also deplete your bone density. Mine went from the high end of normal to osteoporosis in 6 months time. Putting me at greater risk for a fracture. Not good. Also cholesterol shot way up. Since stopping these me cholesterol is back to normal and my bone density is improving. For the little help the AI's do I chose not to take them. Good luck with your decision.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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