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Old 03-04-2008, 02:16 PM   #9
hutchibk
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Join Date: Oct 2005
Posts: 3,519
My posts to you have nothing to do with paranoia or fear, GD. As a matter of fact, I would characterize them as more "Healthy Skepticism" (sound familiar?) than anything else. I am a smart independent thinker who leads my life with an eye of justified suspicion when mysterious and evasive characters attempt to sell me on something. You show yourself to be disingenuous by attempting to be sarcastic/clever, yet you continue to evade my questions. Were you to answer what your interest is in us, it might allay my suspicions.

Remember, you have come into our house, and you do not share our particular disease or complications from it. Yet you wish to share your opinions and conclusions and agenda. I find that rather curious.

I have not picked a fight with you, I have asked why you have chosen to participate in our particular forum. Should be easy enough for you to answer, yet you evade. Are you here simply to share info? Or are you here to share your opinions and conclusions that fit your beliefs? Are you here to scare? Are you here to recruit? Are you here because of a passion for HER2 patients?

As I stated above and fully stand by: "Full disclosure is important when a mysterious participant is sharing "opinion" and "conclusions"...

As I said, I am not soley familiar with you from this forum. You are a well-documented activist who seeks to challenge and change the culture of pharma companies, the culture of clinical oncology, the culture of research and trials, the culture of cancer treatments, the culture of the FDA and of ASCO. Not that yours is not an honorable plight, however patients in real-time treatment may not be your most appropriate target audience. (I read alot, and the web is an interesting place...)
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 03-05-2008 at 10:55 AM.. Reason: typo
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