HER2 Support Group Forums - View Single Post - Got back from Young survivors conference!

Chelee · 02-29-2008, 07:03 PM

Michele, I have to agree with Lolly...you are a beacon of hope! And lets not forget our wonderful Audrey. You two are quite the pair and I must say the two of you give so many women hope to hang on to. There is no rhyme or reason as to why some recur right away...and then others that never do? It boggles the mind.

You think they would want to check tumors out from long term survivors like you and Audrey that haven't recurred and really study them? Is that ever done?

I know you said it has nothing to do with what you eat...but out of curiousity...what types of foods do you eat if you don't mind me asking? I've changed my diet quite a bit, but it still needs some improvement.

Do you eat any red meat, chicken, fruits and veggies...or what? Or do you just eat pretty much what you feel like? Do you eat the same say you did prior to your DX's...or is it totally different? Can you give me a *rough* idea? Also do you get alot of exercise?

I'm so glad you and Audrey had a chance to get away and have some fun. I'm sure you two had a blast. Its always nice to get together and catch up in person.

Chelee

02-29-2008, 07:03 PM	#8
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Michele, I have to agree with Lolly...you are a beacon of hope! And lets not forget our wonderful Audrey. You two are quite the pair and I must say the two of you give so many women hope to hang on to. There is no rhyme or reason as to why some recur right away...and then others that never do? It boggles the mind. You think they would want to check tumors out from long term survivors like you and Audrey that haven't recurred and really study them? Is that ever done? I know you said it has nothing to do with what you eat...but out of curiousity...what types of foods do you eat if you don't mind me asking? I've changed my diet quite a bit, but it still needs some improvement. Do you eat any red meat, chicken, fruits and veggies...or what? Or do you just eat pretty much what you feel like? Do you eat the same say you did prior to your DX's...or is it totally different? Can you give me a rough idea? Also do you get alot of exercise? I'm so glad you and Audrey had a chance to get away and have some fun. I'm sure you two had a blast. Its always nice to get together and catch up in person. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.