HER2 Support Group Forums - View Single Post - Why don't doctors believe what we tell them?

Paris · 02-29-2008, 09:02 AM

I can totally relate. I have cardiomyopathy and my onc. refused to believe it was from herceptin. I didn't do A/C so I'm sure that's part of why he didn't believe it. I had every cardiac test known to man and the cardiologist assured me it was herceptin damage. He gave me 30 pages of clinical studies to back his assertion up. It is frustrating when doctors don't listen. I have been off of herceptin since January and I've yet to get a call from the oncs. office to see how I'm doing and to schedule an appointment.

02-29-2008, 09:02 AM	#6
Paris Senior Member Join Date: Jan 2007 Posts: 73	Doctors! I can totally relate. I have cardiomyopathy and my onc. refused to believe it was from herceptin. I didn't do A/C so I'm sure that's part of why he didn't believe it. I had every cardiac test known to man and the cardiologist assured me it was herceptin damage. He gave me 30 pages of clinical studies to back his assertion up. It is frustrating when doctors don't listen. I have been off of herceptin since January and I've yet to get a call from the oncs. office to see how I'm doing and to schedule an appointment. __________________ Diagnosed 11/06 IDC left breast Stage 1, High Grade w/extensive High Grade DCIS. Right breast extensive hyperplasia w/calcifications. ER-/PR- HER2+++ Bi-lateral masectomy 12/15/06 w/expanders SNB Node Negative Chemo Taxotere, Cytoxan 2/07-4/07 Herceptin Started 5/07 Exchange surgery 6/15/07 Herceptin stopped after 12 rounds due to herceptin induced cardiomyopathy On heart meds 'til? Age 40 at diagnosis Cancer may have been a defining moment but it does not define me!