Thanks so much friends for all your suggestions. I spoke with the Breast Care nurse today - at least she was concerned about the new mets - she said - "it must be your tumour is very aggressive" - which is what I've been thinking all along.
She connected me up with the nurse in charge of clinical trials - who at least listened to me - but said there really aren't any trials available that I would fit the criteria. I did say to her - I dont feel Im up to clinical trials yet - that there must be a few more chemos I could try. She agreed.
Anyway she emailed my Onc. who emailed back saying.... continue with Taxotere for one more dose (next Thursday) and then we'll have another scan. So.....?? Im still none the wiser and not too good at negotiating the system at the moment.
Had my 1st dose of Aredia today so I guess that will help some.
Still feeling anxious and worried.... trying to refocus on the positive.
Im alive... and sober  .. today! And my bub bubs sure are gorgeous eh?
Thanks so much for being here friends.
Blessings all
Hermiracles
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2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
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