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Spoke with the oncologist
Hi Sheila, Becca, Marejo and Bonnie... thanks so much for your responses. I got to speak with Oncologist today on the phone.. and I feel.. well.. dissapointed.
I just dont feel confident this guy is going into bat for me.. he is very laid back about it all. Not really concerned about these new mets at all. He is the only oncologist in town and very busy.
He said 'oh well they could have been there before and only just showing up now. The chemo doesn't seem to be working for you.. of course we would continue the Herceptin'... with no suggestion of trying anything else....what we are moving onto Palliation now??? I just feel its like he thinks 'oh well.. she's stage 4... not much we can do' I want to aim to get to NED if I can but I feel like the Onc has given up on me already.
Maybe I'm just paranoid about the medical system... never did have much faith in them anyway.... I dunno I could ring the woman I got the 2nd opinion from but I feel I have to try and clarify things with him 1st.... just what is his attitude??? I feel so anxious now and think why should I have to worry about this.
Blessings all
Hermiracles
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2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
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