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Old 02-15-2008, 01:10 PM   #2
PinkGirl
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Join Date: Jul 2007
Location: Canada
Posts: 2,193
Hi Donna
I have mild lymphedema in my arm and hand. It started
a few months after my mastectomy. It can be very
painful.

I was lucky because my cancer centre has a physiotherapist
who specializes in lymphedema and she was a big help to me.

I was shown how to do very, very gentle massage on the
skin to help the fluid move up my arm. I also have an elastic
sleeve and glove. I started out with just the sleeve, but my
hand ended up swelling more. Now I use the sleeve and glove
when I am going to be using my arm strenuously. Luckily this
is not my dominant arm. My arm and hand will also swell when
I am traveling in a car.

It is hard to find someone who knows anything about this. I
saw a local physiotherapist and she admitted to me that she
had very little training in this - other than how to wrap a limb.

I hope you can find someone to help you. I was told that this
is something that will flare up at times and I will have to deal
with it. Right now I am doing well. It was worse in the summer
with the heat and with me doing a lot of gardening. Look luck
with this.
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



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