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When I was newly diagnosed I called the American Cancer Society several times. They have a "live" person taking calls. When my questions were more specific, they took the information and had someone phone me back. . They also do follow up calls. I remember that there was another group that is run by volunteers. You give them your information and someone with a similar diagnosis gets in touch...I cannot find the brochure for it at the moment. I will try again tomorrow. It was a non-profit of some sort. Very kind and helpful. I was able to talk with a survivor who gave me alot of suggestions and hope. Just like HERE!!!
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Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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