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Lolly · 01-31-2008, 05:58 PM

Hi; here's a link to a new web site developed for BC patients with brain mets. Pattyz, one of our long time members who's been battling brain mets, posted it last month. Hope it will give you some information on treatment options. I'm currently on Carbo/Taxol/Avastin for skin and axilla node mets, so don't know how effective it would be for your mom's situation. Look for PattyZ in the members list, then click to find her earlier posts about her current treatment of brain mets with Temodor/Xeloda combo. She has seen some real improvement for multiple mets. Perhaps you could contact her by Private Message, she is very sharing with her experiences.

Brain Mets BC
http://www.brainmetsbc.org/

01-31-2008, 05:58 PM	#12
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	Hi; here's a link to a new web site developed for BC patients with brain mets. Pattyz, one of our long time members who's been battling brain mets, posted it last month. Hope it will give you some information on treatment options. I'm currently on Carbo/Taxol/Avastin for skin and axilla node mets, so don't know how effective it would be for your mom's situation. Look for PattyZ in the members list, then click to find her earlier posts about her current treatment of brain mets with Temodor/Xeloda combo. She has seen some real improvement for multiple mets. Perhaps you could contact her by Private Message, she is very sharing with her experiences. Brain Mets BC http://www.brainmetsbc.org/ __________________ Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation. Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.