Well sweetheart, it is very late and I should be sleeping, but I HAD to reply to your post. It was long, but I read every line and I am praying for you. You may or may not know about my liver troubles. I had liver mets in 2004, but was NED when I got acute myeloid leukemia from too much chemo. I had to have a bone marrow transplant (2006). All was going well in my recovery until this past summer when my body decided to reject my own liver. My bilirubin started to rise and I became jaundice. By the time the bilirubin was up to 12, I was a horrible color green with glowing yellow eyes. I had to take a horse serum (ATG) which was given every other day for six treatments. It took a while, but it worked and all is well with my liver now. I did do exactly what you did with your diet - tightened everything up, cut out processed food...I really believe that helped a lot. Dandelion is known to cleanse the liver. I grew up on fresh dandelion (Greek). Cook it the same way you would spinach. It also comes in tea form. Talk to your doc about adding Milk thistle to your regiment. I still take it and also believe that it helped tremendously. I am totally floored by the NP and glad your doc set the record straight; but for your sake, I have to question his reasoning for not testing your numbers more regularly. My onc tested everyday until things started going in the right direction, then 3x per week, then 1x...and now I get it tested every 2 weeks. I am glad you found a great church with such great people to worship with. I visited a friends church one time and testified like you. They all held me up in prayer and laid hands on me. You could feel the electricity in the room. My nose started to bleed in front of the whole church for no reason. It was a very powerful experience.
Anyway...continue the good job. Stick to that diet - it is so worth it!
Maryann
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Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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