HER2 Support Group Forums - View Single Post - for Lolly and others who have had skin mets--photodynamic therapy with new platinum

Lolly · 01-23-2008, 10:19 PM

Thanks Lani for this new info. I checked into Photodynamic Therapy when these skin mets started acting up again, but so far it's only been given when a patient has been off chemo for a month. I'm hoping to keep it as an option, as there's a clinic here in Oregon which so far is only using it in other cancers but have indicated they may be expanding it's use to BC. Maybe they can trial this new compound!

<3 Lolly

01-23-2008, 10:19 PM	#2
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	Thanks Lani for this new info. I checked into Photodynamic Therapy when these skin mets started acting up again, but so far it's only been given when a patient has been off chemo for a month. I'm hoping to keep it as an option, as there's a clinic here in Oregon which so far is only using it in other cancers but have indicated they may be expanding it's use to BC. Maybe they can trial this new compound! <3 Lolly __________________ Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation. Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.