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Now at least we know
that there is some progression. They STILL don't think the scan reports make sense, but although they can't figure it all out, there is enough evidence of progression that a change is warranted. It seems to be still just in the liver which is good, and my nurse practitioner noted that the doctor was "unimpressed with the amount of cancer" which is also good!
So I was not treated yesterday and am off the Avastin/Tykerb trial. No more bloody nose, high B/P and pooterookies for me, for now anyway. I'll post more info on a new thread.
By the way, those elevated liver enzymes that had me worried last time are all completely normal, even better than the labs before the holidays. So I'm going to attribute it to all that holiday mulled wine and pizza.
Dr. Hope lived up to her name again, and I felt much better afterwards even without any treatment! Tip and Tex came with me and were relieved at the lab results and excited about the new plan. Especially Tiptoe.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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