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Okay, that nursing assistant should be FIRED. She has no idea if extra herceptin will be beneficial or not. Nobody knows yet as far as I can determine. I asked my onc about this last week and she said that the results from the HERA TRIAL (one year vs. two year protocol) probably would not be released for 2 years although many people expected the study to be published in March of 2008. She suspects this delay may be because they are not seeing a statistical difference yet in treatment time frames at this point which makes her think one year will be eventually shown to be as effective as 2 years.....That said, I say if want to finish out your year and your cardiologist is on board and it will give you peace of mind, then finish out the number of treatments you would have had if you were on the one year schedule. BUT, if they think there is too much risk to your heart then don't worry about it because they have no idea yet. I'm venting for you.
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Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
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