Thread: swollen ankles
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Old 01-14-2008, 05:41 PM   #20
Mgarr
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Join Date: Dec 2005
Location: Michigan
Posts: 230
For what its worth - my rant on swelling

Forgive me ahead of time I don't usually get like this but I am reading more & more here about swelling & joint problems.

I had alot of swelling after my Herceptin treatments & I drank lots of water to help alleviate, it started in my ankles and then I had pain in one of my calves. I mentioned it but the doc wasn't concerned because my MUGA's were good so I suffered. Fast forward to ending treatment I had a little relief in the calf then my hip started aching non stop went thru PT to no avail then had a MRI; there was a great deal of swelling but they were not sure what the problem was. I went thru numerous blood tests and other tests with orthopeds until they finally decided it was not an infection or cancer so I could have the hip replaced. While using a cane my left wrist and elbow were swellling (I wrote a post or two about having lymphadema.) It was not lymphadema (recommened to see a neurologist because it was probably caused by surgery) before I could see a neurologist every joint in my body tripled in size and I could barely move. Back to the docs finally to a rheumatologist who drained all the fluid testing it and determined I have an "inflammatory arthritis" - which he said is mostly hereditary. Now, there are health issues that run in our family and this is not one of them. I tell every medical professional that will listen this is a result of my treatment & everyone dismisses me!
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Mary


Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

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