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Chelee · 01-13-2008, 07:28 PM

Tamara, You really should mention this to your onc so they can note it in your chart. I know what you mean about feeling like its whining but its not. Just tell your onc you've noticed quite a bit of edema lately & you would like their thoughts/opinion on it. Its important that they know about these changes. That being said I really feel its due to herceptin.

My lower legs, ankles and feet were full of edema while I was on herceptin. It stayed that way until about a month after I finished herceptin then it went back to normal. My oncologist didn't pay much attention to my edema but DID note it in my chart. Then I mentioned it to my pulmonary doctor and he DID care and put me on a low dose of "Lasix" (diurectic) (Actually before that he was so concerned about HOW swollen my lower legs and ankles were he sent me straight out of his office to the hospital for a doppler to see if I had blood clots.) Which I didn't...but it pays to check these things out. But I have a feeling it IS the herceptin causing it...but you really should mention it to your onc so you won't worry about it. Hang in there.

Chelee

01-13-2008, 07:28 PM	#7
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Tamara, You really should mention this to your onc so they can note it in your chart. I know what you mean about feeling like its whining but its not. Just tell your onc you've noticed quite a bit of edema lately & you would like their thoughts/opinion on it. Its important that they know about these changes. That being said I really feel its due to herceptin. My lower legs, ankles and feet were full of edema while I was on herceptin. It stayed that way until about a month after I finished herceptin then it went back to normal. My oncologist didn't pay much attention to my edema but DID note it in my chart. Then I mentioned it to my pulmonary doctor and he DID care and put me on a low dose of "Lasix" (diurectic) (Actually before that he was so concerned about HOW swollen my lower legs and ankles were he sent me straight out of his office to the hospital for a doppler to see if I had blood clots.) Which I didn't...but it pays to check these things out. But I have a feeling it IS the herceptin causing it...but you really should mention it to your onc so you won't worry about it. Hang in there. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.