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Thank you yes I know need to get it checked, but because they had a fire at the hospital they are busy. but she was awful with me on the phone, she said that anyway even if it was mets until it actually impaired my life quality they would not treat it! because that is what they do for stage 4 BC...I feel so alone fighting this.
The person I talked to is a registrar not my oncologist (whom I have not seen for a year now impossible to see). The registars are trainnees and they change every 6 months so there are no chances to create a respect relationship with them, and you just get patronised.
Anyhow going back to my GP tomorrow and she will phone in the hospital asking them for a CT scan all is very upsetting to have to beg. I have not had a scan for almost 6 months anyway but hey they do not want to have monitoring because they think it is useless..
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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