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dchips1 · 01-08-2008, 10:08 PM

Iwas on Zometa and no problem until I needed a root canal and the dental assistant scraped the inside of my gums and the wound never healed. I do reccomend after much problems and now braces to save my teeth and help me eat that if you do need much more than a cleaning use hyperbaric oxygen treatment according to Marxx protocal. I went from many open areas and loose teeth to 1 very tiny exposed piece of healthy bone. Any time you go to the dentist it is kid gloves///the need to be experienced, gentle and as noninvasive as possible. The lower jaw is worse than the upper for osteonecrosis. We need more research and MD Dentist training to help heal, save jaws and have good quality of life. PS I also got my primary Health insurance to pick up some dental expenses. Good luck with your deciscion on Zometa.

01-08-2008, 10:08 PM	#10
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	If you do need major work Iwas on Zometa and no problem until I needed a root canal and the dental assistant scraped the inside of my gums and the wound never healed. I do reccomend after much problems and now braces to save my teeth and help me eat that if you do need much more than a cleaning use hyperbaric oxygen treatment according to Marxx protocal. I went from many open areas and loose teeth to 1 very tiny exposed piece of healthy bone. Any time you go to the dentist it is kid gloves///the need to be experienced, gentle and as noninvasive as possible. The lower jaw is worse than the upper for osteonecrosis. We need more research and MD Dentist training to help heal, save jaws and have good quality of life. PS I also got my primary Health insurance to pick up some dental expenses. Good luck with your deciscion on Zometa. __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.