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swanky · 01-08-2008, 09:44 PM

Kim - thanks for checking on me! All goes well, I am 6 months in and gearing up for my 3rd round of scans on mon. As part of the trial we have to get scanned every 2 months. My 1st two scans were clear so I am hoping to keep the trend going LOL. I will post results as soon as I have them. My onc is somewhat at a loss of what to do. The trial's goal is to maintain disease, keep it from progression and best case scenerio shrink the tumors. But in my case it shrank them until they don't show up on scans. So does he take me off the trial and hope all the little buggers are dead? Or does he have me continue just in case? We are looking into whether I can stay on the drug while doing rads...I had my recurrence before I made it to rads. So I guess it is a good dilemma to have, but I am scared to lose it. Anyhoo, still no side effects other than a mild headache that pops up every once in awhile. I asked for an MRI of the brain too because I have never had one and I want to make sure the headaches are definately from tx.

I will update more after my scans. Wish me luck!

Leea

01-08-2008, 09:44 PM	#2
swanky Senior Member Join Date: Jul 2007 Location: Bakersfield, CA Posts: 38	Kim - thanks for checking on me! All goes well, I am 6 months in and gearing up for my 3rd round of scans on mon. As part of the trial we have to get scanned every 2 months. My 1st two scans were clear so I am hoping to keep the trend going LOL. I will post results as soon as I have them. My onc is somewhat at a loss of what to do. The trial's goal is to maintain disease, keep it from progression and best case scenerio shrink the tumors. But in my case it shrank them until they don't show up on scans. So does he take me off the trial and hope all the little buggers are dead? Or does he have me continue just in case? We are looking into whether I can stay on the drug while doing rads...I had my recurrence before I made it to rads. So I guess it is a good dilemma to have, but I am scared to lose it. Anyhoo, still no side effects other than a mild headache that pops up every once in awhile. I asked for an MRI of the brain too because I have never had one and I want to make sure the headaches are definately from tx. I will update more after my scans. Wish me luck! Leea __________________ Age 33 at dx - 9/15/06 L breast, Invasive solid DC w/ extensive DCIS, Grade 3, ER/PR negative/ HER2 neu positive (barely) -AC DD, taxotere, taxol w/ herceptin -Bi lat 1/18/07, multiple foci of IDC admixed with DCIS, IDC varied from 0.1, 0.5, and up to 1.6 cm, 1/19 + nodes Expanders in place Pregnant when dx Mom to 4 beautiful kiddos (boys: 5 and 14 mos, girls: 17 and 3) Recurrence in neck lymph node and 8mm spot in L breast above expander, herceptin stopped BRCA 1 positive Clinical trial since 7/23/07 (PARP INHIBITOR)-NED for 9 months, supraclavicle node popped back up,..so we cut it out! Full neck dissection - only 1 positive node ER/PR negative and now HER2 negative Currently on Xeloda and NED