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Old 01-07-2008, 10:11 AM   #5
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Mary Jo;

As I had a lumpectomy I have not had reconstuction but my friend did this past summer. She had the one where you get a tummy tuck and they move the fat up to the breasts. She went to a very well known and respected plastic surgeon who specializes in this and the breasts look very good apparently....I haven't seen them. The only unexpected disappointment she has is some trouble with lympodema ever since. Apparently this can happen as they are operating in that area. She did not have this before and is not sure she would have proceeded had she known. I am only passing this along as I was very surprised as I have never heard it mentioned as a possible problem before.

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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