After my second chemo treatment (A/C) my scalp became very sore and itchy...then the hair started to fall out. My scalp was very sensitive throughout treatment...could not stand anything touching it...no hats, scarves...sometimes even the wind hurt!!! I used an organic body lotion made by Nature's Gate . When my hair started to grow in it was also very itchy and I used the Nioxin products and found that they really helped. A funny chemo story: I was at the movies in the restroom and there were 3 teenaged girls there too. They were washing up when I was in the "stall". They were very loud and talking about how awful they looked. Just as I came out of the stall one of them announced that her hair looked so bad people probably thought she was on chemo. Well...she just about choked when she saw bald me. I just smiled. I heard her say to her friends as they walked out, "Oh I can't believe I just said that...that poor lady..." So, maybe a teenager learned something that day, eh???
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!