Suzanne,
I have to agree with Kelly and Mary Jo, this is a tough journey and one I would not have willingly started nor wished on anyone. However, as with anything in life, one must look at the positive of any situation and this one has definitely had a positive side for me.
I discovered how many caring friends and family members that I truly have. So many prayers, so much help, so many kind gestures: I might not have had the opportunity to experience all this otherwise. As Kelly said, life takes on a whole new meaning and your appreciation of it grows tremendously.
I found that rubbing coco butter on my head helped the itching prickly feeling. As a matter of fact, I eventually rubbed it on my whole body--it just seemed to make me feel more comfortable. I also found that wearing scarves and hats was more comfortable than wearing my wig. I only wore my wig for other people--when I thought that others would be more comfortable with my wig than with a hat or scarf. I was perfectly comfortable anywhere in just a hat or scarf, and went bald at home. My sons' friends quickly became comfortable with my baldness!
Although it may seem endless now, this will pass and you will grow back beautiful hair.
My best wishes to you,
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
Last edited by sassy; 01-06-2008 at 05:14 PM..
Reason: spelling
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