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Bill, Great idea and I feel its needed. I'm exactly two yrs out from my surgery and I don't know HOW MANY times the social worker at my cancer center brought up the topic of support to me and asked where I find my support? I ALWAYS told her about the her2support board. It wasn't until about 4 months ago she FINALLY came up to me & asked for the her2support groups website url. (About time.)
I wished someone would of given me the *url* to this site the day I was DX. I always told this social worker you just can't get this kind of vaulable information, or support any where else when it comes to Her2 bc. Depending on what Joe's thoughts are on this I would be happy to put flyers, cards or whatever in our chemo room...and hand some to my surgeon's NP. She is the one that pulls the women aside when first DX.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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